Monday, June 21, 2010

MULTIPLE SCLEROSIS..Why is this so hard?

MULTIPLE SCLEROSIS, is an autoimmune disease, which scares me more and more everyday! 
As the sun rises my fear to go out in the sun and heat fills my heart with anxiety, as you see I live in Arizona, and the heat is something everyone learns to live with, but people like me, cry from the pain of the feeling of razors cutting through your body with any heat above 85 degrees!


I have had 4 doctors tell me they are 98% sure I have this disease, but MRIs do not show any lesions on the brain, but some can be seen on the spine with the trained eye. MS is not diagnosed by the process of exclusion. It is diagnosed by careful history taking, thorough neurological examination, and tests such as MRI (not CAT Scan), physiological tests such as evoked potentials (BAER, SER, VER) and laboratory tests, such as serum and CSF immunological changes. Monitoring the T-cell lymphocyte function test may help in prognostication and treatment of MS.

I suffer from sensory loss on my face and chest and abdominal area, some doctors say this is normal others are positive it is just another symptom that proves MS as a probable diagnosis. I get flare ups when my stress levels are high, and I am always exhausted!! I wish for an answer, I wish for a physician who really wants to help. The baclofen (medication) seems to help the spasms in my legs and arms but the pain is sometimes so unbearable.
I plead with anyone who might read this, if you have some advice on what my next step should be...I am listening! 

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